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Transgender and HIV: Risks, Prevention, and Care Education and Soul-Searching: The Enterprise HIV Prevention Group by Douglas Hein, B.A.,
Program Manager, AIDS Services, Boston Public Health Commission, 1010 Massachusetts
Avenue, Boston, MA 02118 USA Citation: Hein D., Kirk M. (1999) Education and Soul-Searching: The Enterprise HIV Prevention Group. IJT 3,1+2, http://www.symposion.com/ijt/hiv_risk/hein.htm
Abstract
Introduction
This paper will focus briefly on Enterprise's membership, mission, and history as well
as recent paradigm shifts in HIV prevention. The workshop sessions will be described
fully, including key issues for workshop participants. A Brief History of Enterprise
Enterprise also provides opportunities for community visibility and individual empowerment. Group members are active locally and nationally in promoting awareness about FTM issues through participation in educational forums, conferences, art exhibitions, and performances. In 1997, Enterprise sponsored four events in Greater Boston that significantly increased the organization's visibility. A few hundred people attended an evening of music and celebration in late March to commemorate the publication of Loren Cameron's book, Body Alchemy: Transsexual Portraits.[2] In early April, the New England Film Festival premiered You Don't Know Dick: Courageous Hearts of Transsexual Men [3] and named the film Best Documentary of 1996. In June, Enterprise co-sponsored the first FTM contingent for Boston Gay Pride. In August, Enterprise shared sponsorship of The Hero's Journey: The Third Annual FTM Conference of the Americas with two other FTM groups, the Officer's Club and the local chapter of American Boyz. From 1993 to 1996, Enterprise members met weekly in each others' homes. During 1996,
the membership used a community room in Boston for meetings. Since December 1997,
Enterprise meetings have been held in Waltham, Massachusetts at the International
Foundation for Gender Education (IFGE), an organization focused on support and advocacy
for the MTF/ FTM transgender/transsexual community. Paradigm Shifts in HIV Prevention Research and popular journalism about HIV prevention between 1991 and 1995 focused on four areas of concern:
The Boston Public Health Commission and the Fenway Community Health Center began a three-week support and education group for uninfected gay men in 1994.[8] The group model was designed to extend HIV-negative post-test counseling for men at risk and is based on an existing support and education group for HIV-positive individuals in Boston.[9] The HIV-negative support and education group continues to meet monthly at the Fenway Community Health Center. Although the 1994 intervention targets uninfected gay men, project staff developed the model with the intention that it be replicated for other populations at risk. Group members contribute significantly to the content of each session, prioritize issues they want to address, and develop prevention strategies based on their particular needs. In the process of planning an HIV prevention group for FTMs, we realized that some of their concerns and experiences were similar to the concerns of gay men in 1991:
The Enterprise Prevention
Workshops The two-year time period is mentioned because it seems to correlate with some of the issues discussed later by men in the prevention workshops. The authors discussed four possible reasons for the men's ambivalence:
Two series of workshops were conducted in 1997 and 1998. Each series consisted of three sessions that spanned a two-month period, with a one, two, or three week interval between each session. Scheduling was based on the needs and time constraints of Enterprise members. Each session was approximately two hours long. The first series of workshops was held in Boston during the winter of 1997. The second series was held in Waltham during the spring of 1998. There were four to six men in each workshop session, and all identified as FTM transsexuals. Although heterosexual, bisexual, and gay men attended the workshops, most of the participants identified as gay or bisexual. Heterosexual men were more likely to drop out before the third session. Participants were in different stages of gender transition. Some had been taking testosterone for years, undergone multiple surgeries, and were living fully as men. Other participants were just starting their transition, taking low doses of testosterone, and contemplating surgical options. For purposes of coherence and clarity, we will combine content from both the 1997 and 1998 series of workshops in our descriptions of workshop components. The descriptions of sessions imply that topics were discussed sequentially in a predetermined order. In reality, group discussions were loosely organized around the multiple themes addressed in this paper. Each workshop was facilitated by a non-FTM HIV prevention counselor and a peer facilitator from Enterprise. During the first workshop session, facilitators employed simple ground rules, asked participants to talk about their reasons for attending the group, and discussed the risks and benefits of participation. They used the beginnings and endings of each session as check-in time regarding members' needs and expectations. Participants' discussion responses were written on an easel chart during each session. SESSION I BY YOUR RESPONSE TO DANGER IT IS The above epigram is used to initiate discussion about:
Participants seemed to value the opportunity to talk about themselves as well as their concerns about HIV. Some expressed relief that the workshop offered more than generalized information about safer sex and prescriptive advice about condoms and dental dams. Building trust between FTM participants and the facilitator: Part of the first session involved a conscious dialogue between the non-FTM facilitator
and participants. This facilitator spoke briefly about what he had learned so far, and
asked group members to share as much information as they wanted about their lives as
transsexual men. Although workshop participants knew each other well, they willingly
shared their personal stories with the facilitator. This included information about their
jobs, gender histories, current stages of transition, sexual orientation, and the impact
of hormones and surgery. They also talked about relationships with co-workers, parents,
siblings, significant others, spouses, and children. SESSION II Sharing personal stories related to HIV:
Educating about HIV/STD transmission: Talking to partners about HIV status and safer sex:
At first, participants seemed focused on HIV disclosure as a strategy to avoid infection. As group members talked more extensively about the meanings of disclosure for infected and uninfected people, they asked more questions about psychosocial issues for people with HIV. Some of the men expressed appreciation regarding similarities between coming out as HIV-positive and disclosing one's FTM identity. Participants also began to understand the limitations of disclosure as a prevention strategy, and that in the absence of established trust, negotiating safer sex was an essential part of self-protection.[13] Discussion focused on simple ways to set sexual boundaries:
Participants also discussed nonverbal strategies for sexual risk management. Some men
stayed partially clothed during sex to avoid intercourse as well as the disclosure of
their transsexual status. Other men used body language to convey sexual boundaries. The
facilitators reinforced the effectiveness of using one's body to change power dynamics,
avoid unprotected sex, and send signals to partners about sexual alternatives. SESSION III Risk reduction is the informational component of behavior change where education about HIV transmission and risk reduction supplies like condoms and bleach are provided for people at risk. Risk management is supportive education and counseling that empowers individuals to make decisions about behavior change by considering both risk reduction guidelines and issues related to the social, cultural, and personal meanings of sexual behaviors.[14] Harm reduction is an intermediate intervention, especially useful for substance users, in which avoiding infection and injury takes priority over drug treatment and abstinence.[15] Often the terms risk reduction, risk management, and harm reduction are used interchangeably. In this section, we present these methods as related but fundamentally different prevention practices. Risk reduction promotes behavior change through guidelines provided by an external source. Risk management and harm reduction are client-centered, focus on sustaining behavior change over time, and help internalize the process of behavior change by shifting the locus of control back to the individual. Understanding the links between sex and the brain: Education is a cognitive function that happens in the brain cortex. The cortex controls knowledge and awareness and is the learning center of the brain. Sexual behavior is a limbic function that happens in the brain stem. This part of the brain controls one's emotions, behavior, and motivation as well as one's sense of smell and other involuntary actions of the body. Anger, rage, fear, hunger, and satiation are all instinctual responses connected to the brain stem. Sexual response (including penile and clitoral erections, pre-ejaculation, ejaculation, and vaginal lubrication) is an involuntary response to stimuli.[16] The following pairs of words are used to illustrate the differences between cortical and limbic function. Facilitators asked group members to brainstorm their own lists of comparative responses under the headings thinking and feeling.
Participants in one of the workshops formulated a different interpretation of the above exercise. These men viewed thinking as risking death, and correlated facts and knowledge about HIV to avoiding infection. They viewed feeling as risking life and correlated the expression of sexual desire to their survival as new men. These participants considered sexual energy as essential to their survival as breathing. They also valued sexual experimentation and desire and regarded sexual feelings as fundamental elements of masculine expression and identity. Using risk management and harm reduction:
After the preparatory exercise, the group participants were asked to choose a sexual behavior for discussion. During the first workshop cycle, all the men who participated in this exercise identified as gay or bisexual. Participants chose to discuss performing oral sex on a man.
Participants stated that the italicized responses were connected to their identities as FTMs. Key Issues for Workshop Participants The roles and meanings of sexual behaviors:
For FTMs who identified as gay and bisexual, sexual encounters with biological males provided opportunities to experience gender equality. Gay sex was described as man-to-man and reciprocal for both partners regarding power, control, and submission. Sex with men also allowed participants to develop affinities with their partners' genitals. One group member described viewing his partner's penis as a friend. Other participants experienced vicarious enjoyment of male genitals. Group members also valued sexual intimacy with other men because it provided access to what one participant called cock energy. Some participants felt that having male energy was as important to their transition as having a male body. Semen had significant value as a source of male energy and nourishment.[17] The emotional risks of sexual behaviors:
One participant related that simply being perceived as a man by potential male or female sexual partners predisposed him to emotional and physical risk. He described the profound validation he continues to feel being recognized as male, and the difficulty of asserting his needs when his gender identity is at stake; doing so might jeopardize his acceptability as a sexual partner, complicate the encounter, and end in rejection. Other participants described sexual encounters in which they chose not to disclose their transsexual status. This usually involved staying partially or fully dressed during sexual acts. One man recounted keeping his briefs on during an encounter and gaining sexual pleasure by rubbing against his partner's body. Other participants reported feeling frustrated by sexual experiences focused primarily on their partners' pleasure. While group members enjoyed performing oral sex and masturbation on other men, their needs for attention and release were sometimes deferred or ignored. Participants talked about the incremental nature of their gender transition and its affect on self-confidence in sexual situations. Some men stated that their sexual self-esteem fluctuated, and that variations in sexual confidence seemed linked to concerns about ambiguous gender presentation. They were not interested in passing as men; they wanted to be men, and sometimes felt understandably at odds with the stages involved in becoming men. One participant reported being at risk for HIV early in his transition. He described responding to sexual situations with passivity and felt that this reflected his years of being socialized as female. This man told the group that acquiring male social behaviors was one of his strategies for managing risk; acting male equated with being male, and he felt more confident with both male and female partners in asserting his needs. Group members struggled with gender-discordant language when describing sexual situations. Most group members were living fully as men, and many had undergone testosterone therapy, chest surgeries, and hysterectomies. None of the participants had completed genital reconstruction. Group members described sexual experiences in ways that felt consistent with their socialization as new men. Participants referred to some sexual acts as fucking and acknowledged that actual penetration was limited. They referred to masturbation as jerking off and their genitals as cocks or dicks with the recognition that their choices regarding genital reconstruction were yet to be resolved. [19] Group members valued condoms because they provided male-identified options for safer intercourse and oral sex, but found them difficult or impossible to use. When one group member related his struggles with safer sex, other participants raised the possibility of adapting dental dams for different sexual acts. He shuddered as he told the group that he associated dental dams with vaginal sex and being female; they were not an option, even if it meant contracting HIV. One participant described sexual encounters in which he felt objectified or "used" his male partners. He recounted situations in which he focused solely on his partners' genitals and ignored their needs as people. He seemed to understand that his fascination with erections and ejaculation was normal and one way to gather information about male sexual function. He also expressed concern about treating men like sexual objects because this felt inconsistent with some of his values about relationships and intimacy. Another group member talk about the profound envy he felt during sexual contact with other men. He described never being able to "measure up," always feeling "inadequate," and his ongoing struggle to accept himself fully as a man. Dealing with grief and loss: This paper documented an HIV prevention program for FTM transsexuals. The purpose of the intervention was to help participants manage HIV in healthy ways. Implicit in that goal is the value of staying uninfected. Group members were encouraged to define health in their own terms, and for most men, remaining HIV-negative was a primary goal. They seemed to perceive HIV as synonymous with stigma and loss, and being HIV-positive was considered one more strike in addition to being FTM. The content of workshop sessions focused as much on sexual health as HIV prevention. Participants valued the opportunity to talk about transsexual health, sexual orientation, and human sexual response. One unstated goal of Education and Soul Searching was eventual peer leadership of a prevention project based on the intervention. Transsexual professionals and peers have been essential in the provision of culturally competent HIV prevention both nationally and internationally. However, using a non-FTM facilitator had value for group members. Although he needed additional information from group members about their lives, he was knowledgeable about FTM culture. He understood issues related to sexual orientation, had years of experience in HIV prevention, and wanted to advocate for transsexual health services. Some participants viewed him as a male role model; others saw him as a community ally worthy of trust. This intervention has not been evaluated regarding program efficacy and prospective
outcomes for group members. However, the 1994 prevention project for uninfected gay men
has been qualitatively evaluated.21 This document examines how theories of life stress,
cognitive escape, social learning, psychoeducation, and social networks inform this
intervention. These issues may have some relevance for FTM transsexuals, especially gay
male FTMs. The authors would like to thank Buck, Mykael Hawley, and all the men who participated in Education and Soul-Searching. Their honesty and "courageous hearts" made the prevention workshops possible. Correspondence and requests to: Douglas Hein (doug_hein@bphc.org) [1] Enterprise members report significant changes in their ability to access competent transsexual health care in Boston since 1993. Members actively educate the local medical and social service community about the needs of FTMs. [2] Cameron L. (1996) Body Alchemy: Transsexual Portraits. Cleis Press. [3] A Northern Light/Candace Schermerhorn Production, 1050 Commonwealth Avenue, Boston, MA 02215 (1996) You Don't Know Dick: Courageous Hearts of Transsexual Men. This film profiles six FTMs, one of whom is a founding member of Enterprise. [4] McFarland W., Fischer-Ponce L., Katz M. (1995) Repeat negative HIV testing in San Francisco: magnitude and characteristics. American Journal of Epidemiology. October: 719-723. This study found that repeat testers are more likely to be gay or bisexual men, and that these individuals are three times more likely to seroconvert in the future. [5] Prieur A. (1990) Norwegian gay men: reasons for continued practice of unsafe sex. AIDS Education and Prevention. [6] Odets W. (1995) In the Shadow of the Epidemic: Being HIV-Negative in the Age of AIDS. Duke University Press: Durham. [7] Odets W. (1994) AIDS education and harm reduction for gay men: psychological approaches for the 21st century. AIDS & Public Policy Journal. Volume 9. No 1. [8] Hein D., Beverley G., Longo V., Burak M., (1995) A Short-Term Support and Education Group for HIV-Negative Gay and Bisexual Men. Boston Public Health Commission and Fenway Community Health Center. Unpublished. [9] Brauer S. (1990) The HIV-infected individual: group work as a rite of passage. Smith College Studies in Social Work. Volume 60. No. 3: 233-243. [10] Namaste K. (1997) Summary: HIV/AIDS Issues for FTMs. The Hero's Journey: Third Annual FTM Conference of the Americas. Unpublished. [11] The flyer was created by an Enterprise member and has the following text: Dump your fears for an evening of education and soul-searching with Doug Hein, a professional HIV counselor who runs special workshops dedicated to helping us understand HIV, its impact on our lives, and what we can do. [12] Jenny Holzer. Walker Art Museum Sculpture Garden: Minneapolis. [13] Stein M., Freedberg K., Sullivan L., Savetsky J., Levenson S., Hingson R., Samet J. (1998) Sexual ethics: disclosure of HIV-positive status to partners. Archives of Internal Medicine. Volume 158: 253-257. [14] Rofes E. (1995) Reviving the Tribe: Regenerating Gay Men's Sexuality and Culture in the Ongoing Epidemic. Harrington Park Press: New York and London. 208. [15] Springer E. (1991) Effective AIDS prevention with active drug users: the harm reduction model. Journal of Chemical Dependency Treatment. Volume 4. No. 2: 147-149. [16] Odets. 5-13. Odets promotes AIDS education that "acknowledges the social realities of the epidemic" and is "relatively free of homophobia, misrepresentation, and moralization." He writes, "Next among the psychological issues is called off line-on line by Australian psychologist Ron Gold. Put simply, this is the readily observed idea that people exist in different 'states' of consciousness when they are being educated and when they are having sex. In neurophysiological terms this is the idea that people are educated 'with' their cortexes and have sex(at least substantially(with their brain stems. Gold makes a convincing point: Our education is aimed at the cortex with little regard for how the cortex and brain stem interact during sex . . . Most acculturation and socialization involve establishing 'communication' between these two states of consciousness, and this can be done in the context of AIDS education if we stop educating the cortex as if it were the source of all human feeling and behavior." [17] Herdt G. (1981) Guardians of the Flutes: Idioms in Masculinity. McGraw-Hill: New York. Herdt writes about the Sambia tribe in New Guinea in which young boys ingest the semen of older males to acquire male sexual energy and power. [18] Martin J., Knox J. (1995) HIV risk behavior in gay men with unstable self-esteem. Journal of Gay and Lesbian Social Services. Volume 2: 21-41. [19] Devor H. (1997) FTM: Female-to-Male Transsexuals in Society. Indiana University Press: Bloomington and Indianapolis. 467-468. Devor writes about the men in her study, "Within the spheres of their everyday lives, they ceased being transsexuals and simply became men . . . There were, however, three main areas in which all participants who lived as men were reminded of their transsexualism no matter what their stage of physical transition: in public toilets, in doctors' examination rooms, and in sexual intimacies. These were the areas of their lives wherein they were required to expose those parts of their bodies which proclaimed them to be other than physiologically average males." [20] Prieur A. (1998) Mema's House Mexico City: On Tranvestites, Queens, and Machos. The University of Chicago Press: Chicago and London. 39. Prieur writes, "Representations form the body, but the body imposes its limits; sexual organs are objective facts that form the representations of gender and the identities . . . While bodies are not destinies in any absolute sense, they do form social experiences, and are formed by social experiences." Group members valued experiences with sexual partners who perceived them as male and appreciated their bodies as they were. The men reported feeling more self-accepting of their sexual anatomy after such encounters, and less focused on anger and grief. 21 Chen J. (1998) Final Report: Evaluation of a Three-Week Support and Education Program for HIV-Negative Gay and Bisexual Men at the Fenway Community Health Center. Harvard School of Public Health. Unpublished. |